"Racing for 3.21" on World Down Syndrome Day!
Today thousands of people are hitting the streets, bike paths, mountain trails and any other place that tickles their fancy. Today is the annual “Virtual” race for World Down syndrome day and its not to late for you to join the cause.
There are several twitter post that are up to date on the various race participtants and activities at #racingfor321
The idea is that you can run, walk, bike, hike, swim and/or move for 3.21 miles at any time, any place and at any pace on March 21 to celebrate World Down Syndrome Day and raise awareness for the Down syndrome community.
The mission of the National Down Syndrome Society is to be the leading human rights organization for all individuals with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.
For more information on Down syndrome and NDSS, visit www.ndss.org or call 800-221-4602.
The NDSS has published a Preferred Language Guide and interestingly enough the Jounalist AP Stylebook also also covers the topic and recommends using “Down syndrome,” we have listed a few others from the NDSS Preferred Language Guide below.
People with Down syndrome should always be referred to as people first.
• Instead of “a Down syndrome child,” it should be “a child with Down syndrome. Also avoid “Down’s child” Or”Down’s,” as in, “He has Down’s.”
• Down syndrome is a condition or a syndrome, not a disease.
• People “have” Down syndrome, they do not “suffer from” it.
• “Intellectual disability” or “cognitive disability” has replaced “mental retardation” as the appropriate term
• NDSS strongly condemns the use of the word “retarded” in any derogatory context. Using this word is hurtful and suggests that people with disabilities are not competent.
Down vs. Down’s
• NDSS uses the preferred spelling, Down syndrome, rather than Down’s syndrome.
Down syndrome is the most commonly occurring chromosomal condition.
In the United States approximately one in every 700 babies are born with Down syndrome, or around 6,000 births per year and in 1866 an English Physician named John Langdon Down became known as the “father” of the syndrome by publishing his research and writings. Then in 1959, the French physician Jérôme Lejeune identified Down syndrome as a chromosomal condition but not until year 2000 did researchers, working on the Human Genome Project, announced that they had determined the sequence of base pairs that make up this chromosome because of the relatively low number of genes on the chromosome. As a result Chromosome 21 was the second human chromosome to be fully sequenced.
There are three different types of Down Syndrome
The most common is called Trisomy 21. An error in cell division called “nondisjunction.” which accounts for 95% of cases, the second type is translocation, which accounts for about 4% of cases of Down syndrome, and lastly Mosaicism is the least common form of Down syndrome and accounts for only about 1% of all cases
A dear Friend
To conclude, I have a very dear friend that has the most beautiful child with Down syndrome and she brightens the day for all that have the privilege to be in her presence. I have watched my friend grow as a human being in a way that only she could have taught him, because people with Down syndrome are active participants in educational, social and recreational activities and take part in sports, music, art programs and any other activities in they desire. People with Down syndrome are valued members of their families and communities, and make meaningful contributions to society and can change your heart with their love.